Thursday, April 16, 2015

Wake-up Call

Wake-up call, I fell asleep at te wheel.

How scary is that? Falling asleep at the wheel.  I have to write it twice for it to sink in...

I have been driving Zoé around for the past 7 years. Ever since the first month of life, we've been running through Manhattan , from the West Side to the East Side, from Uptown to Downtown, from the Upper West side to Central Park South, from Piedmont to San Francisco, from Oakland to San Mateo, from the East Bay to Sacramento.  And as far as Salt Lake City!

I just collapsed with fatigue.
Thank goodness I wasn't driving too fast, it was the exhaustion added to the heat, the AC and radio being off, both windows being open, that caused the narcolepsy to kick in.

One more checkmark on my Registry Form, where every year they assess the changes.
Last year, I was fine, this year, well, daytime sleepiness has increased dramatically.  My favorite waiting rooms are those with comfy couches where I can doze off while Zoé is working. I fall asleep while in music therapy, lulled by the piano and the songs.

Physically, the legs are skinnier, the energy level has decreased, ziplock and bottles are nearly impossible to open.  My neck is now in pain and I sleep with a heating pad at night, to alleviate the discomfort.  But I try not to dwell on it, the show must go on.
I need to keep up for David and Zoé.

That being said, I have decided to QUIT one therapy session for Zoé. Communication Works, which at first was a good idea. It would enable Zoé to learn how to behave with peers, how to interact and learn to be more flexible, to help on the aspect of perspective taking....but clever Zoé found that CW was another arena for her to perform, playing a game, increasing the pretend play, where everyday she would come in and say: "I am in the red zone today" (Meaning angry, frustrated). I applaud the language usage, but I know very well that she didn't mean it and that it was all a game...

So that's that. No more back to back therapies on Wednesdays. Our last class is in 2 weeks and after that we can take a breather before hitting the road for horse therapy 30 minutes away (Which now takes me an hour).

For Zoé falls are recurrent and I monitor them daily, about 2 or 3.
I always need to hold her hand even though she wants to show her independence... I cherish these moments when we walk to school in the morning and laugh or talk about her day.

Reading is now quite good, not as fluent as it should be, but it is coming along.
Math skills need work and so we've set up a little system and progress chart with stickers and stars.

Voila for now dear readers. Zoé and I are heading out of town tomorrow, with our BFFs, for our bi-annual all girls road trip.

Staying at a resort overlooking the Pacific, with pool, jacuzzi, beach camp fire.
It will be so delightful to relax and enjoy each other's company.

I will be sure to post some pictures.

Until then, enjoy the gorgeous spring time wherever you are.

With fondness,

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