|My poor baby cakes trying to do tummy time, sooo hard for her. It hurts to see this picture|
|My baby in therapy...|
I met a mother on our Myotonic Support Group Forum who lives in Darwin, Australia. She is up for sainthood in my book! She has 3 daughters age 3, 6 and 11 and all three have Myotonic Dystrophy, all three have PDD-NOS (What Zoé also has, which I am learning is on the spectrum for Autistic-like behaviors) and all three have ADHD (What we've been told to monitor ) and all three have anxiety as they are watching their father slowly waste away...He is 36 years old, used to be an athlete and is now hindered by this disease.
|My Zoé with her helmet and her holter heart monitor...|
Zoé is on her way.
She is the LOVE of my LIFE!