Saturday, May 9, 2009
Mother: playmate, best friend, chauffeur, cook, caregiver, unconditionally loving (and loved), nurturer, fighter and advocate. Hallmark doesn't use these words in Mother's Day cards, so I thought I'd start this way.
This is my second Mother's Day and so much has happened since the last one. I think I should fill you in on advocacy though. Which if have to get better at. It's hard to defend something you truly want for someone for whom your love has no boundaries, while you try to keep your equanimity and composure. I tried being very diplomatic, without pleading nor being aggressive, but to no avail...
Last Thursday afternoon was our "clinic" appointment and what came out of it could have been predicted: "Budget cuts, waiting lists, good potential for growth and development, etc." In short, we didn't get any more services, but at least we didn't lose what we had: one hour of OT and half an hour of PT. We were told that Zoé is doing so well, that perhaps she doesn't need anymore time at CCS. I was told by the attending doctor that what truly matters is what we do at home.
So I know what my Hallmark card will say tomorrow: "Thanks Mom, let's take a break today and let's NOT exercise! It's YOUR day".
I was also told that if Zoé does reach a plateau, or doesn't progress they might increase the PT session.
It's like a double edge sword, for you want her to get more time, but you'd prefer for her to never stop progressing.
So we'll keep working.
When I look at Kayla's parents and their dedication towards her, I also see my own reflection. All the hard work pays. There is no other way of helping Zoé, and if she is where she it today, it's thanks to all the love, care, and never ending exercise we've been providing.
On the balls, on the wedge, off the balls, over the wedge, reaching high, reaching low, standing up, sitting down, ankle foot orthotics, helmet, glasses, stander, swing and bouncers.
Kayla's mom said that "your life is full of hopes and dreams, and sometimes it can change in the blink of an eye..." oh what wisdom I see there. Nothing is more true than that.
You are pregnant and envision a life of delights and wonders, and then, everything changes. But wonderful things happen in changes and I wouldn't do it any other way. The lessons I am learning are my invaluable, priceless wonders for my invaluable, priceless daughter. You don't get them in "Pregnancy for Dummies or Parenting for Dummies", but within yourself and your strength.
I also get much help from all the mothers I have met on the way, my own to start with and all the moms in my support group, so I dedicate my blog to all of them for their inspiration and openness: to Suzie, Shettal, Carol, Margaret, Melissa, Irene, Celana, Marybeth, Karen, Trish, Mom, Julie, Gwen, Anne, Odile, Alicia, Magali, Caroline,Gina, Elena, Gerry, Sibylle, Ginny, Lise and if I have forgotten some they will know who they are.
And to Kayla's mom, Lisa, for her inspiration...to keep working on my blog and to invite you all on our wonderful journey with Zoé.
From our side of the blog we send our love.