Another year, another description, another addendum to the file, another testament of how far we've come and how far we've got to go as well.
Here is the painting in words of our Lil Miss Zoé for her new second grade teachers.
Zoé Berman:
Zoé
is a fun-loving girl with a wild imagination. She loves to pretend play and we
sometimes have to channel that imagination.
She
is bilingual in French and English and loves to sing and perform.
Zoé
was diagnosed with Myotonic Muscular Dystrophy (Steinert, Type 1) at birth. Her
diagnosis means that she has a multi-systemic disease that involves gradual
atrophy of her muscles (Heart, hands, neck, feet, trunk, etc.)
Due
to her disability, she can get tired and lack stamina. Sitting for a long period
of time gets really tiresome and therefore it compromises attention span and
her staying focused.
We
would like to make sure that we take into account energy preservation and
perhaps allow some short breaks to enable her to regroup and stay on task.
Zoé
is very comfortable with adults less so with her peers, perhaps this being due
to her facial configuration and low facial muscle tone. Her speech is
compromised and therefore it is not very clear. We would really like the social
aspect to be taken into account. Making sure that all social activities such as
lunch and recess take place outdoor as opposed to room 20.
As
far as classroom accommodations, we would like for Zoé to use a stadium chair
(we will provide one) during rug time instruction. We also have a slanted board
that can be helpful. Making sure Zoé can sit in front of the teacher to read
cues would also be helpful.
All
in all, we look forward to this year in 2nd grade for Zoé to thrive
and blossom. We would love to see her become an avid reader and for her to make
new friends.
As far as services go (OT, Speech, PT), if possible, we'd like for them to be as less disruptive as possible, of course taking account the class' schedule and other arrangements.
We
thank you in advance for your care and dedication.
Fondly,
We enjoyed the company of wonderful friends, family and newfound friends (Lorenzo and Francesco, in Italy). Seeing old friends 15 years down the road, as if no time had elapsed, picking up where we had left off. It was just wonderful seeing Morena and Massimo in their gorgeous house surrounded by the most beautiful mountains of northern Italy.
A short getaway to Venice was the highlight of David's summer.
Annecy by the lake with the cousins was wonderful: paddle boats, water slides and make-believe.
Deolen was our haven of rest and relaxation.
We got back a week ago, got over jet lag and we've already started OT, Kumon, and a first appointment to Shriners Hospital. Never a dull moment.
Wishing you a blissful start to the school year.
From our side of the screen to yours.
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