Tuesday, September 17, 2013

Our Journey with Myotonic Dystrophy--A must watch!

It is incredible how this video hits home every time I watch it.
I remember Zoé's birth.
Her stay in the Neonatal Intensive Care Unit.
Her little isolette, her sweet little body and face and hands behind the glass.
The skin to skin contact we shared after that.
The tubes and beeping machines.
Her first series of exercises, her many appointments with PTs and doctors.
Her walker.
Her first steps: 2 years and 2 months.
Her many braces and casts. Unlike Kayla we chose Purple.
Kayla is our hero, a true inspiration.
A beacon of hope in this world of dark uncertainties.
Her prognosis was probably uncertain and scary, but every day she walks one more step towards a cure and in her wake we follow, looking up to her as she proves that miracles do happen.
We love you and your wonderful, dedicated mother, Lisa!
Sarah and Zoé

1 comment:

Gwen and Co said...

Congratulations, little girl!
What an achievement!
Yes, we can!