This is what a new mom at our support group told us on Tuesday when she heard that her 2 month-old baby had leukemia and down-syndrom.
It makes you put your own life into perspective and relish the good and fun times you have with your little one.
Zoé is at daycare today and I take advantage of this opportunity to reflect upon this statement.
"I grabbed it and ran away with it." Isn't it what we've all done, when we had no choice. I keep thinking about how different my life would be if Zoé didn't have MMD and I can't even picture it. I think about how we'd probably lounge around the house, paint, bake muffins and go to the park. Or perhaps I'd be teaching and she'd be in preschool full time. Instead we are working on her muscles, her speech, her balance, everything that make her who she is and whom I am so thankful for.
It's intense though. Last week I even forgot we had speech at 9:00 and when I strapped Zoé into my car and she said: "Nanan" instead of "Maman" I realized we should have been at Speech Therapy! We got there for a 10-minute long session that I had to pay in full, of course! ($55/30 minute)
On the same day I forgot that I had invited two good friends to my house for "drinks and Chatter" and I came home at 8:30pm. They had a good laugh when I called them and apologize for not hosting our monthly mini-support group over wine and cheese!
It just come to show you how regimented my life is and how, when a schedule changes, everything unravels.
Last night two good friends came over and we discussed what it's like to have a child with special needs, and how lucky we are that it was from birth. Our children won't know otherwise, nor will we.
In case of an accident, I can't even imagine what it must be like.
Zoé is doing so well. She never ceases to amaze me. She is driven, full of energy and always ready to conquer it all.
We go to her neuro-muscular clinic in Sacramento on Friday. I hope we get good news and interesting feedback. I will for sure let you know what comes out of it.
Just a few thoughts to think about...for today.
Much love coming your way.
2 comments:
Oh my....thank you so much for sharing! I cried as I read your post. We share a similar life, as I am home full time with Kate instead of teaching. I haven't posted on our family blog since April and you have inspired me to get "back to work." I actually find it therapeutic. Keep writing and I will definently keep reading. I want to hear all about Zoe's progress!
Thank you so much, Elizabeth. Wishing you much luck on this journey. I'll keep writing and hope I can help in anyway, if you need to vent, share, or just rejoice.
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